Barriers to Recognition in the Lives of People with Epilepsy: A Socio-Legal Perspective
DOI:
https://doi.org/10.62355/ejels.63019Keywords:
epilepsy, recognition, fundamental rights, discrimination, socio-legal studiesAbstract
This article explores barriers faced by people with epilepsy from a fundamental rights perspective, emphasising the gap between legal norms and lived reality. While the Constitution of Finland broadly safeguards fundamental rights, their practical realisation remains incomplete. Drawing on Axel Honneth’s theory of recognition, the study shows that a lack of recognition, especially in social relations, weakens inclusion and participation. Furthermore, the research identifies discriminatory practices across healthcare, education, and employment. To fully realise these rights, the article proposes measures such as extending mobility support, ensuring reasonable adjustments in education and work, and improving access to personal assistance. Reinforcing recognition across legal, social, and personal dimensions is essential for narrowing the gap between rights and reality, fostering equal participation, and strengthening fundamental rights for people with epilepsy.References
Allotey, Pascale, and Daniel Reidpath. 2009. “Epilepsy, Culture, Identity and Wellbeing.” In Social Epileptology: Understanding Social Aspects of Epilepsy, edited by Jaya Pinikahana and Christine Walker. Nova Science Publishers.
Anderson, Joel, and Axel Honneth. 2005. “Autonomy, Vulnerability, Recognition, and Justice.” In Autonomy and the Challenges to Liberalism. New Essays, edited by John Christman and Joel Anderson. Cambridge University Press. https://doi.org/10.1017/CBO9780511610325.008.
Andorno, Roberto. 2016. “Is vulnerability the foundation of human rights?” In Human Dignity of the Vulnerable in the Age of Rights, IusGentium Series 55, edited by Aniceto Masferrer and Emilio García Sánchez. Springer.
Atula, Sari. 2023. ”Epilepsia aikuisella.” Duodecim dlk00012 (026.015).
Beran, Roy G. 2002. “Legal aspects of epilepsy.” Seizure: European Journal of Epilepsy 11: 211–216. https://doi.org/10.1053/seiz.2001.0580.
Beran, Roy G. 2008. “Epilepsy and Law.” Epilepsy & Behavior 12 (4): 644–651.
Beran, Roy G. 2009. “Epilepsy, Driving and Law.” In Social Epileptology: Understanding Social Aspects of Epilepsy, edited by Jaya Pinikahana and Christine Walker. Nova Science Publishers.
Beran, Roy G., John A. Devereaux, and Donal Buchanan. 2020. “Some legal aspects of epilepsy.” Epilepsy & Behavior 111: 107244. https://doi.org/10.1016/j.yebeh.2020.107244.
Berg, Alex, Mervi Issakainen, Kaijus Ervasti, Tero Montonen, Eino Solje, and Anna Mäki-Petäjä-Leinonen. 2025. ”Barriers to Accessing Care and Support Services for Older Immigrants and Immigrants with Dementia in Finland: Perspectives of Professional Social and Health Care Providers.” Journal of Cross-Cultural Gerontology 40: 49–76. https://doi.org/10.1007/s10823-025-09523-2.
Bishop, Malachy, and Chase A. Allen. 2001. “Employment Concerns of People with Epilepsy and the Question of Disclosure: Report of a Survey of the Epilepsy Foundation.” Epilepsy & Behavior 2 (5): 490–495. https://doi.org/10.1006/ebeh.2001.0241.
Bishop, Malachy, Donald M. Stenhoff, Kelly D. Bradley, and Chase A. Allen. 2007. “The Differential Effect of Epilepsy Labels on Employer Perceptions: Report of a Pilot Study.” Epilepsy & Behavior 11 (3): 351–356. https://doi.org/10.1016/j.yebeh.2007.06.010.
Boenigk, Silke, Aaron A. Kreimer, Annika Becker, Linda Alkire, Raymond P. Fisk, and Sertan Kabadayi. 2021. “Transformative Service Initiatives: Enabling Access and Overcoming Barriers for People Experiencing Vulnerability.” Journal of Service Research 24 (4): 542–562. https://doi.org/10.1177/109467052110133.
Cappelletti, Mauro, and Bryant Garth. 1978. “Access to Justice: The Newest Wave in the Worldwide Movement to Make Rights Effective.” Buffalo Law Review 27 (2):181–292.
Devlin, Anna L., Morris Odell, Judith L. Charlton, and Sjaanie Koppel. 2012. “Epilepsy and Driving: Current Status of Research.” Epilepsy Research 102: 135–152. https://doi.org/10.1016/j.eplepsyres.2012.08.003.
Edefonti, Valeria, Francesca Bravi, Katherine Turner, Ettore Beghi, Maria Paola Canevini, Monica Ferraroni, and Ada Piazzini. 2011. “Health-Related Quality of Life in Adults with Epilepsy: The Effect of Age, Age at Onset and Duration of Epilepsy in a Multicentre Italian Study.” BMC Neurology 11: 33. https://doi.org/10.1186/1471-2377-11-33.
Epilepsialiitto. 2025. “Ei lisäleikkauksia sote-järjestöille.” Accessed March 25, 2026. https://www.epilepsia.fi/uutiset/ei-lisaleikkauksia-sote-jarjestoille/.
Epilepsialiitto. 2026. “Talous.” Accessed March 25, 2026. https://www.epilepsia.fi/epilepsialiitto/talous/.
Ervasti, Kaijus, Minni Teerikangas, Mervi Issakainen, and Anna Mäki-Petäjä-Leinonen. 2023. “Epilepsia ja oikeus.” Oikeus 52 (1): 66–70.
Fiest, Kirsten M., Jonathan Dykeman, Samual Wiebe, et al. 2013. “Depression in Epilepsy: A Systematic Review and Meta-Analysis.” Neurology 80: 590–599. https://doi.org/10.1212/WNL.0b013e31827b1ae0.
Finnish Transport and Communications Agency (Traficom). 2021. Driving Health Assessment Guidelines. 251562/03.04.03.06/2021.
Fisher, Robert S., Carlos Acevedo, Alexis Arzimanoglou, et al. 2014. “A Practical Clinical Definition of Epilepsy.” Epilepsia 55 (4): 475–482. https://doi.org/10.1111/epi.12550.
Honneth, Axel. 1995. The Struggle for Recognition. The Moral Grammar of Social Conflicts. Polity Press.
Honneth, Axel. 2004. “Recognition and Justice: Outline of a Plural Theory of Justice.” Acta Sociologica 47 (4): 351–364.
Issakainen, Mervi, Kaijus Ervasti, Minni Teerikangas, Reetta Kälviäinen, and Anna Mäki-Petäjä-Leinonen. 2024. “Access to Justice in the Light of Everyday Problems and Prejudice: A Pilot Study on the Experiences of People with Epilepsy in Finland.” Seizure: European Journal of Epilepsy 120: 189–193.
Jacoby, Ann, and Gus A. Baker. 2008. “Quality-of-Life Trajectories in Epilepsy: A Review of the Literature.” Epilepsy & Behavior 12 (4): 557–571. https://doi.org/10.1016/j.yebeh.2007.11.013.
Jacoby, Ann, Joanne Gorry, and Gus A. Baker. 2005. “Employers’ Attitudes to Employment of People with Epilepsy: Still the Same Old Story?” Epilepsia 46 (12): 1978–1987. https://doi.org/10.1111/j.1528-1167.2005.00345.x.
Järvinen, Iina, Riku Neuvonen, and Pauli Rautiainen. 2020. ”Viestinnän ja kulttuurin saavutettavuus.” In Oikeuksia, vapauksia ja rajoituksia – Viestintäoikeuden vuosikirja 2019, edited by Päivi Korpisaari. Helsingin yliopiston oikeustieteellisen tiedekunnan julkaisuja.
Kalenius, Aleksi, Pauli Rautiainen, and Iina Järvinen. 2022. “Tarveperusteinen rahoitus ei ole positiivista erityiskohtelua.” Oikeus 51 (1): 80–105.
Kamel, Jordan, and Mark Cook. 2009. “Epilepsy: Definition, Syndromes, and Treatment.” In Social Epileptology: Understanding Social Aspects of Epilepsy, edited by Jaya Pinikahana and Christine Walker. Nova Science Publishers.
Karjalainen, Katja, and Marjo Ylhäinen. 2021. ”Vammaisten oikeuksien yleissopimus ja sosiaalinen osallisuus – oikeus työhön.” Lakimies 119 (6): 946–962.
Kass, Joseph S., and Rachel V. Rose. 2019. “Driving and Epilepsy: Ethical, Legal, and Health Care Policy Challenges.” Continuum 25 (2): 537–542. https://doi.org/10.1212/CON.0000000000000714.
Kawecki, Daniel. 2022. “End of Consensus? Ideology, Partisan Identity, and Affective Polarization in Finland 2003–2019.” Scandinavian Political Studies 44: 478–503. https://doi.org/10.1111/1467-9477.12238.
Kälviäinen, Reetta, Hanna Ansakorpi, Arto Immonen, et al. 2020. ”Epilepsiat (aikuiset).” Duodecim 136 (11): 1357–1358.
Laitinen, Arto. 2019. “Axel Honneth: Yhteiskunta, kritiikki, tunnustussuhteet.” In 1900-luvun saksalainen yhteiskuntateoria, edited by Ilkka Kauppinen, Miikka Pyykkönen, and Olli-Pekka Moisio. Gaudeamus.
Lang, Jana, Sarah Jeschke, Birthe Herziger, et al. 2022. “Prejudices against People with Epilepsy as Perceived by Affected People and Their Families.” Epilepsy & Behavior 127. https://doi.org/10.1016/j.yebeh.2021.108535.
Lavapuro, Juha, Tuomas Ojanen, and Martin Scheinin. 2011. “Rights-Based Constitutionalism in Finland and the Development of Pluralist Constitutional Review.” International Journal of Constitutional Law 9 (2): 505–531. https://doi.org/10.1093/icon/mor035.
Liamputtong, Pranee. 2009. “Qualitative data analysis: conceptual and practical considerations.” Health Promotion Journal of Australia 20 (2): 133–139. https://doi.org/10.1071/HE09133.
Loenen, Titia. 2025. The Conceptualization of Equality and Non-discrimination as Legal Standards: From Formal to More Substantive Equality. Nijhoff Law Specials. Brill. https://doi.org/ 10.1163/9789004538368.
Metsähonkala, Eeva-Liisa. 2025. “Epilepsia lapsella.” Duodecim dlk00121 (022.004).
Neuvonen, Riku, and Pauli Rautiainen. 2015. “Lakivaraukset Suomen perusoikeusjärjestelmässä.” Lakimies 113 (2): 222–248.
Obstbaum, Yaira, Lotta Hautamäki, Kaijus Ervasti, et al. 2025. “‘Are You Able to Walk? Asked the Bank Clerk.’ Everyday Legal Problems and Access to Justice from the Perspective of Older People.” Journal of Aging Studies 75: 101377. https://doi.org/10.1016/j.jaging.2025.101377.
Ojanen, Tuomas, and Janne Salminen. 2019. “Finland: European Integration and International Human Rights Treaties as Sources of Domestic Constitutional Change and Dynamism.” In National Constitutions in European and Global Governance: Democracy, Rights, the Rule of Law. National Reports, edited by Anneli Albi and Samo Bardutzky. Springer. https://doi.org/10.1007/978-94-6265-273-6.
Revillard, Anne. 2018. “Vulnerable Rights: The Incomplete Realization of Disability Social Rights in France.” Social Sciences 7 (6): 88. https://doi.org/10.3390/socsci7060088.
Saari, Juho. 2024. Harvinainen hetki: Hyvinvointivaltio valinkauhassa. Polemia-sarja 128.
Scambler, Graham. 2009. “Epilepsy, Stigma and Society.” In Social Epileptology: Understanding Social Aspects of Epilepsy, edited by Jaya Pinikahana and Christine Walker. Nova Science Publishers.
Smeets, Vivian M.J., Brigitte A.G. van Lierop, Jos P.G. Vanhoutvin, Albert P. Aldenkamp, and Frans J.N. Nijhuis. 2007. “Epilepsy and employment: Literature review.” Epilepsy & Behavior 10: 354–362. https://doi.org/10.1016/j.yebeh.2007.02.006.
Socada, Lumikukka. 2024. “Autismikirjon häiriöt.” Duodecim dlk00355 (025.021).
Soste. 2025. Hallitus on leikannut eniten sosiaali- ja terveydenhuollosta ja sosiaaliturvasta – ministeri Purran leikkaus sote-järjestöiltä kasvattaisi osuutta entisestään. Accessed December 15, 2025. https://www.soste.fi/hallitus-on-leikannut-eniten-sosiaali-ja-terveydenhuollosta-ja-sosiaaliturvasta-leikkaus-sote-jarjestoilta-kasvattaa-osuutta-entisestaan/.
Thomas, Sanjeev V., and Aparna Nair. 2011. “Confronting the Stigma of Epilepsy.” Annals of Indian Academy of Neurology 14 (3): 158–163. https://doi.org/10.4103/0972-2327.85873.
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