Digital daglig verksamhet
– utmaningar och möjligheter till digital inkludering för vuxna med intellektuell funktionsnedsättning
DOI:
https://doi.org/10.3384/SVT.2024.31.1.4871Keywords:
digital divide, intellectual disability, information and communication technology, day centre, COVID-19 pandemicAbstract
Digital daily activities – challenges and opportunities for the digital inclusion of adults with intellectual disability
This article analyses challenges and opportunities related to the digitisation of daily activities for adults with intellectual disability (ID) using information and communication technology (ICT). An overarching question is whether these experiences can promote digital inclusion for people with ID, in accordance with the Convention on the Rights of Persons with Disabilities. The article draws on interviews with 16 service users, nine support persons and 19 staff and managers at five day centres, all of which used digital activities during the COVID-19 pandemic. The interviews were analysed using theoretical thematic analysis informed by van Dijk’s (2012) arguments on the diffusion, acceptance, and adoption of new technologies to achieve digital inclusion. During the spring of 2020, many day centres closed due to COVID-19. The introduction of digital activities revealed a lack of access to ICT. Bureaucratic barriers were encountered, such as uncertainty about secure digital platforms and GDPR. Additionally, ICT use could be challenging due to rapid developments, as well as ubiquitous demands for the innovation and improvement of provided activities. Another obstacle was a lack of digital skills and scepticism towards digital activities among staff at the day centres and support persons in the service users’ home environments, which sometimes led to the denial of services. Yet, cooperative ICT usage among staff and support persons was perceived to promote a more holistic approach to service provision. When adequately supported, ICT usage allowed opportunities for personal development and improved self-esteem in persons with ID, as well as individually tailored service provision. The experiences of using ICT during the pandemic increased the day centres’ abilities to overcome physical distance in offering meaningful activities for service users. However, disparities persist, warranting further efforts towards reducing the digital divide affecting people with ID.
References
Alfredsson Ågren, K., Kjellberg, A. & Hemmingsson, H. (2020) Access to and use of the internet among adolescents and young adults with intellectual disabilities in everyday settings. Journal of Intellectual & Developmental Disability, 45(1): 89–98. doi: 10.3109/13668250.2018.1518898
Bahner, J., Gäddman Johansson, R. & Svanelöv, E. (2024) Who counts as a sexual subject? The impact of ableist rhetoric for people with intellectual disability in Sweden. Sexuality Research and Social Policy, 21(1): 161–176. doi: 10.1007/s13178-023-00873-5
Barlott, B., Aplin, T., Catchpole, E., Kranz, R., Le Goullon, D., Toivanen, A. & Hutchens, S. (2020) Connectedness and ICT: opening the door to possibilities for people with intellectual disabilities. Journal of Intellectual Disabilities, 24(4): 503–520. doi: 10.1177/1744629519831566
Biernacki, P. & Waldorf, D. (1981) Snowball sampling: problems and techniques of chain referral sampling. Sociological Methods & Research, 10(2): 141–163. doi: 10.1177/004912418101000205
Borgström, Å. (2022) Unga kvinnor med intellektuell funktionsnedsättning – erfarenheter av självpresentationer på internet. Socialvetenskaplig tidskrift, 29(1): 91–110. doi: 10.3384/SVT.2022.29.1.4416
Braun, V. & Clarke, V. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2): 77–101. doi: 10.1191/1478088706qp063oa
Bryant, B.R., Seok, S., Ok, M. & Bryant, D.P. (2012) Individuals with intellectual and/or developmental disabilities use of assistive technology devices in support provision. Journal of Special Education Technology, 27(2): 41–57. doi: 10.1177/016264341202700205
Caton, S., Bradshaw, J., Gillooly, A., Hatton, C., Flynn, S., Oloidi, E., Jahoda, A., Maguire, R., Marriott, A., Mulhall, P., Taggart, L., Todd, S., Abbott, D., Beyer, S., Gore, N., Heslop, P., Scior, K. & Hastings, R.P. (2023) Digital participation of people with profound and multiple learning disabilities during the covid‐19 pandemic in the UK. British Journal of Learning Disabilities, 51(2): 163–174. doi: 10.1111/bld.12501
Chadwick, D., Alfredsson Ågren, K., Caton, S., Chiner, E., Danker, J., Gómez-Puerta, M., Heitplatz, V., Johansson, S., Normand, C.L., Murphy, E., Plichta, P., Strnadová, I. & Flygare Wallén, E. (2022) Digital inclusion and participation of people with intellectual disabilities during covid-19: a rapid review and international bricolage. Journal of Policy and Practice in Intellectual Disabilities, 19(3): 242–256. doi: 10.1111/jppi.12410
Chadwick, D.D. & Fullwood, C. (2018) An online life like any other: identity, self-determination, and social networking among adults with intellectual disabilities. Cyberpsychology, Behavior, and Social Networking, 21(1): 56–64. doi: 10.1089/cyber.2016.0689
Chadwick, D.D., Quinn, S. & Fullwood, C. (2016) Perceptions of the risks and benefits of Internet access and use by people with intellectual disabilities. British Journal of Learning Disabilities, 45(1): 21–31. doi: 10.1111/bld.12170
Darcy, S., Maxwell, H. & Green, J. (2016) Disability citizenship and independence through mobile technology? A study exploring adoption and use of a mobile technology platform. Disability & Society, 31(4): 497–519. doi: 10.1080/09687599.2016.1179172
Davidson, A-L. (2015) A collaborative action research about making self-advocacy videos with people with intellectual disabilities. Social Inclusion, 3(6): 16–28. doi: 10.17645/si.v3i6.412
Engwall, K. (2023) Online activities for individuals with intellectual disabilities at a day centre in the wake of covid-19. British Journal of Learning Disabilities, 51(2): 229–237. doi: 10.1111/bld.12512
Eriksson, C. & Ineland, J. (2023) Digitalization of welfare organizations for persons with intellectual disabilities: between democratic ideals, legitimacy and institutional logics. Disability & Society, doi: 10.1080/09687599.2023.2198661
FN (2006) Konvention om rättigheter för personer med funktionsnedsättning.
Isaksson, C. & Björquist, E. (2021) Enhanced participation or just another activity? The social shaping of iPad use for youths with intellectual disabilities. Journal of Intellectual Disabilities, 25(4): 619–635. doi: 10.1177/1744629520911311
Johansson, M., Björne, P., Runesson, I. & Ahlström, G. (2017) Healthy ageing in people with intellectual disabilities from managers’ perspective: a qualitative study. Healthcare, 5(3): 45. doi: 10.3390/healthcare5030045
Johansson, S., Gulliksen, J. & Gustavsson, C. (2021) Disability digital divide: the use of the internet, smartphones, computers and tablets among people with disabilities in Sweden. Universal Access in the Information Society, 20(1): 105–120. doi: 10.1007/s10209-020-00714-x
Klamas, M. (2019) Samordnare inom välfärdsteknik & IKT för att främja självständighet och delaktighet för personer med funktionsnedsättningar: ett samverkansprojekt. Rapport, Fyrbodal: FoU Socialtjänst.
Lissitsa, S. & Madar, G. (2018) Do disabilities impede the use of information and communication technologies? Findings of a repeated cross-sectional study – 2003–2015. Israel Journal of Health Policy Research, 7(1): 66–83. doi: 10.1186/s13584-018-0260-x
Lussier-Desrochers, D., Normand, C., Romero-Torres, A., Lachapelle, Y., Godin-Tremblay, V., Dupont, M., Roux, J., Pépin-Beauchesne, L. & Bilodeau, P. (2017) Bridging the digital divide for people with intellectual disability. Cyberpsychology: Journal of Psychosocial Research on Cyberspace, 11(1): Artikel 1. doi: 10.5817/CP2017-1-1
Luthra, R., Westberg, N., Högdin, S. & Tideman, M. (2020) ”Just because one has attended a special class does not mean that one isn’t capable”: the experiences of becoming and being not involved in traditional occupations for young people with intellectual disability. Nordic Social Work Research, 10(4): 330–342. doi: 10.1080/2156857X.2018.1553734
Lövgren, V. & Bertilsdotter Rosqvist, H. (2015) ”More time for what?” Exploring intersecting notions of gender, work, age and leisure time among people with cognitive disabilities. International Journal of Social Welfare, 24(3): 263–272. doi: 10.1111/ijsw.12135
Mietola, R. & Vehmas, S. (2019) ”He is, after all, a young man”: claiming ordinary lives for young adults with profound intellectual disabilities. Scandinavian Journal of Disability Research, 21(1): 120–128. doi: 10.16993/sjdr.590
Myndigheten för delaktighet (2020) Begränsade livsval: situationen för personer med intellektuell funktionsnedsättning. Rapport 2020:8, Stockholm: Myndigheten för delaktighet.
Mäkinen, M. (2006) Digital empowerment as a process for enhancing citizens’ participation. E-Learning and Digital Media, 3(3): 381–395. doi: 10.2304/elea.2006.3.3.381
Näslund, R. & Gardelli, Å. (2013) ”I know, I can, I will try”: youths and adults with intellectual disabilities in Sweden using information and communication technology in their everyday life. Disability & Society, 28(1): 28–40. doi: 10.1080/09687599.2012.695528
Ramsten, C. & Blomberg, H. (2019) Staff as advocates, moral guardians and enablers: using ICT for independence and participation in disability services. Scandinavian Journal of Disability Research, 21(1): 271–281. doi: 10.16993/sjdr.608
Ramsten, C., Marmstål Hammar, L., Martin, L. & Göransson, K. (2017) ICT and intellectual disability: a survey of organizational support at the municipal level in Sweden. Journal of Applied Research in Intellectual Disabilities, 30(4): 705–713. doi: 10.1111/jar.12265
Reichenberg, M. (2016) Who will present it during the broadcast? A case study at a daily activity centre. Journal of Research in Special Educational Needs, 16(1): 65–73. doi: 10.1111/1471-3802.12061
Renblad, K. (2003) How do people with intellectual disabilities think about empowerment and information and communication technology (ICT)? International Journal of Rehabilitation Research, 26(3): 175–182. doi: 10.1097/00004356-200309000-00003
Robinson, L., Cotton, S.R., Ono, H., Quan‐Haase, A., Mesch, G., Chen, W., Schulz, J., Hale, T.M. & Stern, M.J. (2015) Digital inequalities and why they matter. Information, Communication & Society, 18(5): 569–582. doi: 10.1080/1369118X.2015.1012532
Seale, J. (2023) It's not all doom and gloom: what the pandemic has taught us about digitally inclusive practices that support people with learning disabilities to access and use technologies. British Journal of Learning Disabilities, 51(2): 218–228. doi: 10.1111/bld.12497
SFS (1993:387) Lag om stöd och service till vissa funktionshindrade.
Socialstyrelsen (2021) Covid-19:s konsekvenser för personer med insatser enligt LSS. Slutrapport. Stockholm: Socialstyrelsen.
Socialstyrelsen (2023) Statistik om insatser enligt lagen om stöd och service till vissa funktionshindrade 2022. Stockholm: Socialstyrelsen.
Stefánsdóttir, G., Björnsdóttir, K. & Stefánsdóttir, Á. (2018) Autonomy and people with intellectual disabilities who require more intensive support. Scandinavian Journal of Disability Research, 20(1): 162–171. doi: 10.16993/sjdr.21
Svanelöv, E., Enarsson, P., Flygare Wallén, E. & Stier, J. (2019) Understandings of participation in daily activity services among people with intellectual disabilities: a pedagogical sociocultural perspective. Journal of Intellectual Disabilities, 23(2): 203–215. doi: 10.1177/1744629517743578
Tideman, M. & Aspling, J. (2021) Covid-19-pandemins påverkan på personer med intellektuell funktionsnedsättning i Sverige. Socialvetenskaplig tidskrift, 28(4): 393–415. doi: 10.3384/SVT.2021.28.4.4366
van Dijk, J.A.G.M. (2012) The evolution of the digital divide: the digital divide turns to inequality of skills and usage. I: J. Bus, M. Crompton, M. Hildebrant & G. Metakides (red.) Digital enlightenment yearbook 2012 (s. 57–75). Amsterdam: IOS Press.
Vetenskapsrådet (2017) God forskningssed. Stockholm: Vetenskapsrådet.
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