Experiences from the use of Pictorial Support in Child Health Services
The Voices of Five-Year-old Children
DOI:
https://doi.org/10.58986/al.2024.15796Nyckelord:
child health services, participation, children, United Nations Convention on the Rights of the Child, nursing, visual supportAbstract
According to the United Nations Convention on the Rights of the Child, children are entitled to express their own views and to be heard. The use of pictorial support in child-specific information from the child health services may improve children’s ability to participate in their own healthcare. This study aimed to explore the experiences of five-year-old children and their caregivers regarding pictorial material used by the child health services in western Sweden. Semi-structured interviews were conducted with 22 children; data from them were analyzed using content analysis. Further, 26 caregivers completed a questionnaire; the resulting data were analyzed using qualitative thematic analysis. The results showed that the pictorial material worked as support and increased understanding and preparedness in both groups. Further, the children’s participation increased during their health visit. This indicates that pictorial support strengthens children’s rights in healthcare settings, suggesting that it should be used on a permanent basis.
Nedladdningar
Referenser
Bildstöd (n. d). [Pictorial support]. https://bildstod.vgregion.se/ [18 Aug 2023]
Beukelman, D. & Mirenda, P. (2013). Augmentative and Alternative Communication: Supporting Children and Adults with Complex Communication Needs. 4th Edition. Baltimore: Brookes Publishing.
Bratt, E-L., & Nilsson, S. (2020) Personcentrerad vård inom hälso- och sjukvård för barn och ungdomar [Person-centred care within health care for children and adolescents]. In I. Ekman. (Ed.). Personcentrering inom hälso- och sjukvård från filosofi till praktik (pp 200-222). Stockholm: Liber.
Braun, V. & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology 3(2), 77-101. doi: 10.1191/1478088706qp063oa
Bray, L., Appleton, V. & Sharpe, A. (2022). 'We should have been told what would happen': Children's and parents' procedural knowledge levels and information-seeking behaviours when coming to hospital for a planned procedure. Journal of Child Health. Care, 26(1), 96–109. doi: 10.1177/13674935211000929
Carney, T., Murphy, S., McClure, J., Bishop, E., Kerr, C., Parker, J., Scott, F., Shields, C., & Wilson, L. (2003). Children's views of hospitalization: an exploratory study of data collection. Journal of Child Health Care 7(1), 27–40. doi: 10.1177/1367493503007001674
Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. doi: 10.1016/j.nedt.2003.10.001
Guba, E. G., & Lincoln, Y. S. (1994). Competing paradigms in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 105–117). Thousands Oaks: Sage Publications.
Gunnerek, J., & Gustafsson, A. (2016). Barns delaktighet och användning av bildstöd - en pilotstudie av KomHIT-modellen i allmäntandvård [Children’s participation and use of pictorial support - a pilot study of the KomHIT-model in dental health care]. University of Gothenburg. [Unpublished master’s thesis].
Kvale, S., & Brinkmann, S. (2014). Den kvalitativa forskningsintervjun [The qualitative research interview]. Lund: Studentlitteratur.
Lambert, V., Glacken, M., & McCarron, M. (2008). 'Visible-ness': the nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland. Journal of Clinical Nursing, 17(23), 3092–3102. doi: 10.1111/j.1365-2702.2008.02462.x
Malterud K. (2001). Qualitative research: standards, challenges, and guidelines. Lancet, 358(9280), 483–488. doi: 10.1016/S0140-6736(01)05627-6
Murphy, J. (2010). Talking Mats® A study of communication difficulties and the feasibility and effectiveness of a low-tech communication framework. Doctoral thesis. Radboud University Nijmegen. https://hdl.handle.net/2066/83261
National Board of Health and Welfare (2014). Vägledning för barnhälsovården [National Guidelines for Child Health Services]. https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/vagledning/2014-4-5.pdf [18 Aug 2023]
Patientlag [Patient Act], The Swedish Riksdag SFS nr: 2014:821 (2014). https://www.riksdagen.se/sv/dokument-och-lagar/dokument/svensk-forfattningssamling/patientlag-2014821_sfs-2014-821/ [18 Aug 2023]
Polit, D., & Beck, C. (2016). Nursing research: Generating and assessing evidence for nursing practice (10th ed.). Wolters Kluwer.
Sahlberg, S., Karlsson, K., & Darcy, L. (2020). Children's rights as law in Sweden-every health-care encounter needs to meet the child's needs. Health expectations, 23(4), 860–869. doi: 10.1111/hex.13060
Schönberg, C., & Lindblad, L. (2019). Barn och föräldrars uppfattning om bildstöd inom barnsjukvård [Children’s and parents’ perception of pictorial support in pediatric care]. University of Gothenburg. [Unpublished master’s thesis].
Tell, J. (2019, August 13). Swedish Child health services: Information about the child health services in Sweden. Rikshandboken [The National Handbook for Child Health Services]. https://www.rikshandboken-bhv.se/metoder--riktlinjer/informationsmaterial-och-brevmallar---oversikt/swedish-child-health-services/ [18 Aug 2023]
Thunberg, G., Johnson, E., Bornman, J., Öhlén, J., & Nilsson, S. (2022). Being heard - Supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design: A position paper. Nursing Inquiry, 29(2), e12426. doi: 10.1111/nin.12426
UNICEF Sverige (n.,d.). Barnkonventionens historia [The history of the Convention on the Rights of the Child]. https://unicef.se/barnkonventionen [18 Aug 2023]
Vantaa Benjaminsson, M., & Nilsson, S. (2017). Experiences of communication in the caring process by children aged 7–13 where there is a requirement for nitrous oxide for needle related procedures. Clinical Nursing Studies, 7 (1), 13-21. doi: 10.5430/cns.v5n1p13
Wettergren, B., Blennow, M., Hjern, A., Söder, O., & Ludvigsson, J. F. (2016). Child Health Systems in Sweden. The Journal of Pediatrics, 177S, S187–S202. doi: 10.1016/j.jpeds.2016.04.055
World Health Organization. (2007). International classification of functioning, disability and health: children and youth version: ICF-CY. World Health Organization. https://iris.who.int/handle/10665/43737 [28 Nov 2023]
Åhl, C., Karlsson, J. & Ingeström, S. (2020). Handbok för barns delaktighet och inflytande. UNICEF Sverige.
Publicerad
Versioner
- 2024-10-15 (2)
- 2024-05-07 (1)
Referera så här
Nummer
Sektion
Licens
Copyright (c) 2024 Anna Karin Larsson, Emma Koskinen, Jessica Arvidsson, Ann Jansson, Emilia Carlsson
Det här verket är licensierat under en Creative Commons Erkännande 4.0 Internationell-licens.
